Mother weeps as medicinal cannabis for epileptic daughter is confiscated at airport

NHS England guidance says it expects that cannabis-based products for medicinal use should “only be prescribed for indications where there is clear published evidence of benefit” and in “patients where there is a clinical need which cannot be met by a licensed medicine and where established treatment options have been exhausted”.Health Secretary Matt Hancock said in the Commons last month that his “heart goes out” to parents experiencing anguish over difficulties in obtaining medicinal cannabis.He said he is working to “unblock” some of the challenges in the system but, ultimately, “these things need to be clinician-led”.Ms Appleby, who has met Mr Hancock, said she had no choice but to seek medical cannabis outside the UK. But the items were taken from her at the airport.”I’m really gutted,” she said. “They just took everything. They knew, apparently they had been notified from social media.”I hadn’t said where we were coming in but obviously everyone knew, all you’ve got to do is put it on the passport. They asked me at border control how long we were away for. I thought, ‘They’re asking questions as someone’s notified them’.”Then they asked if I had anything to declare, and there were loads of them waiting so I knew if I said no I was going to get myself in deeper so I just said yes.” She said border staff were told to seize the cannabis oil and hold it. She now hopes she can obtain an import licence to get it back.Tory MP Sir Mike Penning, co-chairman of the All Party Parliamentary Group (APPG) on Medical Cannabis Under Prescription, said: “This is a shattering blow for Emma and Teagan. It’s a damning indictment of the way this policy has been implemented.”I will be urging all my parliamentary colleagues to get this medicine returned to Emma soonest and demanding that the Department for Health, the NHS and everyone involved gets together urgently so families don’t have to go through the stress and trauma of travelling abroad to get a medicine that is now legal here. “We need compassion not entrenched positions.” A mother who tried to bring medical cannabis illegally into the UK to try to help her severely epileptic daughter broke down in tears after it was confiscated at the airport.Emma Appleby flew back to Britain from Holland with her partner Lee, carrying a supply of medical cannabis oils for Teagan, nine.But the items, which cost £4,600, were seized after the family landed at Southend Airport in Essex.Teagan, from Aylesham near Dover, suffers from a rare chromosomal disorder called Isodicentric 15 as well as Lennox-Gastaut syndrome, which causes up to 300 seizures a day. She suffered a seizure while on the plane.The family flew out, obtained the medicine prescribed by a paediatric neurologist at the Erasmus Hospital in Rotterdam. They collected it from a pharmacy and paid using their own cash and fundraised money.Ms Appleby was comforted in Southend Airport’s terminal building by fellow campaigner Hannah Deacon, who last year became the first person to be allowed to bring THC oil through a UK airport legally for her seven-year-old son Alfie Dingley, who has epilepsy.The law in the UK was changed last November to make access to medical cannabis legal, but parents have been struggling to secure prescriptions, in part due to reluctance within the medical community to prescribe it. Want the best of The Telegraph direct to your email and WhatsApp? Sign up to our free twice-daily  Front Page newsletter and new  audio briefings.

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